As we continue our “in my shoes” series of guest blogs, looking at dementia from different perspectives, Week 11 has been an eventful week with some very important and serious issues covered. Safeguarding has been featured twice – and in the middle of the week the news broke about the “Abusive Pontefract care home workers caught on CCTV” .
In the last ’round up’, we talked about the #dementiachallengers, our passionate Twitter band, and reported that @carer33’s husband / @nursemaiden’s Dad had been turned down for Continuing Health Care funding. I found this depressing and wished them luck with their struggle, remembering all too well our own distressing experience of CHC. It is with great sadness that we learned of Ray’s death this week. This blog aims to hold a mirror up to what is happening in the world of dementia, good and bad, so I will simply state that they were caught up in bureaucratic processes to the end. Indeed the community nurses tried to fast track Ray for CFC 24 hours before he died and he was still turned down.
We are extremely grateful to Shirley Ayres and Stuart Arnott for promoting Whose Shoes? and the dementia blogs on the influential and fascinating Disruptive Social Care podcasts. We were recommended this week (42 mins into the video) by studio guest, Andrea Sutcliffe, CEO of the Social Care Institute for Excellence. The programme went out on Friday, the day that Andrea came up to Coventry to meet Gill Phillips (yes, that’s me!) and Dr Karim Saad (one of our first guest bloggers) who is leading innovative work, including advocating early diagnosis and specialist support for people with early onset dementia. Dr Saad is currently on his way to Australia to speak at the prestigious IPA conference in Cairns.
Here is the round-up of the great guest blogs in Week 11:
In this fascinating TED video, Alanna Shaikh tells us how she is learning to knit and making other positive changes in her life as she prepares to get dementia…
Day 64: In the shoes of … Alan Rosenbach | Special Policy Lead, Care Quality Commission
Continuing the theme of safeguarding, Alan Rosenbach explains CQC’s role in regulating care and support services for people living with the dementia…
_______________________________________________________________ The blog will be back next week. We are hoping to feature a guest blog from Paul Burstow, Minister of State for Care Services; we’ll have more reports on dementia-friendly communities and more insights into how dementia affects real people, real families.
One of the key challenges is to spread awareness among people who DON’T normally think about dementia. With the paralympics at the moment, there is a heightened awareness of disability, but mainly physical disability. How can we promote understanding of dementia amongst the general public, people in shops and banks and public transport…?