‘D’ is for distraction…?

  1. KarimS3D
    A UK social movement unleashed!
    #dementiachallenge #dementiafriends #dementiachallengers #dementiafriendly
    Pls RT! http://bit.ly/P5ik8W

    Thu, Nov 08 2012 23:01:38
  2. KarimS3D
    Dementia: Dropped! Replaced by Major/Minor Neurocognitive Disorder. Possibly as early as May 2013. That’s it folks. http://bit.ly/TyfZ3P

    Mon, Nov 12 2012 23:22:36
  3. lucyjmarsters
    @KarimS3D interesting,when so much work going on to aid awareness/understanding of what #dementia means and what it is to people

    Mon, Nov 12 2012 23:29:36
  4. KarimS3D
    @lucyjmarsters same happened in Japan -> (pejorative) word for dementia dropped @achidgey #stigma

    Mon, Nov 12 2012 23:37:12
  5. WhoseShoes
    We are now the #MajorMinorNeurocognitiveDisorderChallengers http://bit.ly/TyfZ3P @KarimS3D Helpful?? #dementiachallengers RT!

    Tue, Nov 13 2012 00:40:04
  6. KarimS3D
    Q – Can semantics wipe the stigma slate clean?A -#Dementia #NeurocognitiveDisorder #DSM5 @WhoseShoes

    Tue, Nov 13 2012 00:51:28
  7. Paulcoxon81
    @KarimS3D nope not in the slightest, changing the word will achieve nothing at all. @WhoseShoes

    Tue, Nov 13 2012 01:06:00
  8. HLCLC
    RT @WhoseShoes: We are now the #MajorMinorNeurocognitiveDisorderChallengers http://bit.ly/TyfZ3P @KarimS3D Helpful?? #dementiachallengers RT!

    Tue, Nov 13 2012 00:54:05
  9. WhoseShoes
    @KarimS3D New terms take AGES to get into common parlance. We do not have ages. We need to raise awareness NOW. Will confuse & distract 😦

    Tue, Nov 13 2012 00:58:49
  10. KarimS3D
    @WhoseShoes get it right for the D word & everything else falls into place…
    #DSM5
    #dementia
    #NeurocognitiveDisorder

    Tue, Nov 13 2012 01:02:33
  11. WhoseShoes
    @KarimS3D Absolutely! #dementiachallengers are changing ATTITUDES. Change of words can follow… #semantics #stigma #realworld #compassion

    Tue, Nov 13 2012 01:11:19
  12. WhoseShoes
    @KarimS3D @artyelk Japan has changed from ‘Chiho’ to ‘Ninchi-sho’. We change from #dementia to ‘Major or Minor Neurocognitive Disorder’ ??

    Tue, Nov 13 2012 01:03:45
  13. WhoseShoes
    .@KarimS3D I think #dementiachallenge #awareness / #stigma campaign has huge momentum. Change attitudes not words. Unless new single word!

    Tue, Nov 13 2012 01:06:59
  14. WhoseShoes
    .@KarimS3D SERIOUSLY. Twitter is FANTASTIC way to raise awareness of #dementia. We will not be able to tweet about #MajorMinorCognitiveImpai

    Tue, Nov 13 2012 01:13:47
  15. SarahReed_MHR
    @KarimS3D @WhoseShoes Ooh interesting twist on the issue Is “Dementia” like “Hoover” & “Alzheimer’s” (USA) (no connection as far as I know)

    Tue, Nov 13 2012 01:11:57
  16. fullyOccupied
    @KarimS3D interesting. Always seen ‘dementia’ as an outcome of one of a number of disease processes so the new diagnostics may prove…..

    Tue, Nov 13 2012 01:14:21
  17. fullyOccupied
    @KarimS3D less stigmatising &more accurate, but if functional outcome of all those is as we’ve come 2understand as features of ‘dementia’ ..

    Tue, Nov 13 2012 01:16:31
  18. fullyOccupied
    @KarimS3D it seems unhelpful when recent efforts have tried to develop public understanding of something called ‘dementia’.

    Tue, Nov 13 2012 01:18:17
  19. WhoseShoes
    .@Paulcoxon81 @KarimS3D And let’s all spend millions of pounds on rewriting #dementia leaflets and ditching great DVDs in the process….

    Tue, Nov 13 2012 01:18:13
  20. KarimS3D
    @SarahReed_MHR @whoseshoes remember what ‘Dementia’ means..
    De = without
    Ment (root of Mens) = mind
    #pejorative #NeurocognitiveDisorder

    Tue, Nov 13 2012 01:25:16
  21. fullyOccupied
    @KarimS3D yep. I think neurocog descriptions R less stigmatising-though cos they’re long, bound 2become abbreviations! cog challenge 4 me!

    Tue, Nov 13 2012 01:26:09
  22. wakelym
    RT @WhoseShoes: We are now the #MajorMinorNeurocognitiveDisorderChallengers http://bit.ly/TyfZ3P @KarimS3D Helpful?? #dementiachallengers RT!

    Tue, Nov 13 2012 01:43:03
  23. KarimS3D
    ‘Lunacy’, ‘Idiocy’, ‘Imbecile’ & ‘Retardation’ used 2 b (& still r in some cultures) associated w/ mental illness! #stigma #dementia #DSM5

    Tue, Nov 13 2012 01:30:06
  24. HLCLC
    I’m w/ U on this @KarimS3D: it may be because I am Italian but the pejorative connotation always bothered me somewhat

    Tue, Nov 13 2012 01:45:23
  25. Immediately  an “awkwardness” set in. Do I suddenly become “uncaring” because I am  continuing to talk about “dementia”? Don’t I understand what this word really  means??

    Well, yes, as a Latin Scholar, I do.

    Co-incidentally, I have just written a guest blog for the lovely Sarah Reed’s ‘Age Page’ site. I have written about the danger of endless meetings debating process and semantics rather than getting on and DOING something. At the moment the Dementia Challenge focus is on ACTION and AWARENESS and I love it. We are #MakingItReal

    I am worried…

  26. WhoseShoes
    @HLCLC @KarimS3D It bothers me but #cancer came out of the closet by raising awareness not ditching the “taboo” name?

    Tue, Nov 13 2012 01:51:24
  27. WhoseShoes
    @KarimS3D @SarahReed_MHR @paulcoxon81 Agenda will be thrown off track with arguments about semantics… NOT the main priority given urgency?

    Tue, Nov 13 2012 01:47:56
  28. KarimS3D
    @WhoseShoes suggest ALL UK dementia awareness campaigns ‘Neurocognitive Disorder compliant’ @sarahreed_mhr @achidgey Can’t lose momentum!

    Tue, Nov 13 2012 01:54:39
  29. Phew!
  30. omniphonik
    @HLCLC @KarimS3D if we can replace ‘handicapped’, we can replace ‘dementia’. Maybe snappier than major minor neurocognitive disorder though!

    Tue, Nov 13 2012 01:56:29
  31. AnnaHepburnDH
    @HLCLC @karims3d I don’t find ‘dementia’ pejorative. And I think ‘disorder’ is a horrible word.

    Tue, Nov 13 2012 01:58:32
  32. KarimS3D
    @AnnaHepburnDH many of my patients & their carers do, so we work together that little bit harder on how to attain empowerment @hlclc

    Tue, Nov 13 2012 02:05:13
  33. HLCLC
    Interesting how ppl’s perception vary @AnnaHepburnDH @KarimS3D. I don’t mind the word disorder at all… & I’m loving this debate

    Tue, Nov 13 2012 02:09:25
  34. KarimS3D
    @HLCLC @annahepburndh semantics, laden w/ emotion attached from cultural / personal influences, can b managed. Quality care trumps all.

    Tue, Nov 13 2012 02:16:35
  35. michaellondonsf
    RT @omniphonik: @HLCLC @KarimS3D if we can replace ‘handicapped’, we can replace ‘dementia’. Maybe snappier than major minor neurocognitive disorder though!

    Tue, Nov 13 2012 02:05:48
  36. HLCLC
    I agree w/ @KarimS3D on semantics but wouldn’t burn leaflets just yet @WhoseShoes @Paulcoxon81 Ppl call buleti edilis “porcini” after all 🙂

    Tue, Nov 13 2012 02:00:18
  37. KarimS3D
    @HLCLC Ha! Perhaps the answer lies somewhere within the culinary allure of Boletus Edulis ;)) Celebrity chefs? @whoseshoes @paulcoxon81

    Tue, Nov 13 2012 02:11:51
  38. WhoseShoes
    @KarimS3D @HLCLC @Paulcoxon81 Haha! Yes! In finding semantic perfection, don’t let’s let 3 porcini blow the whole house down! #huffandpuff

    Tue, Nov 13 2012 02:21:03
  39. HLCLC
    Very funny @WhoseShoes @KarimS3D @Paulcoxon81 & I also agree that oncological diseases may also need better names 🙂

    Tue, Nov 13 2012 02:25:31
  40. And the debate rages on. But please! We have a FANTASTIC momentum underway with the Dementia Challenge, supported and indeed “challenged” by the amazing #dementiachallengers. Words are important. But time is short and it is SO easy to be distracted…

    “This house believes that we should concentrate on changing lives rather than changing words…”

    The issue is also being hotly debated in our LinkedIn group : ‘The personalisation group to integrate social care, health and housing’. Please take a look or apply to join if you are not already a member. 🙂 Gill

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About Gill Phillips - Whose Shoes?

Passionate about personalisation in health & social care. Creator of Whose Shoes? - an imaginative approach to helping people work together to improve lives. http://nutshellcomms.co.uk
This entry was posted in Blogs, dementia, education, health, mental health, personalisation, public sector, social care, social media, TLAP - Making It Real, well-being and tagged , , , , , , , , , , , , , , , . Bookmark the permalink.

One Response to ‘D’ is for distraction…?

  1. Pingback: A hot, hot, hot potato… Dementia screening. Coming to a GP surgery near you… | Whose Shoes?

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