My dementia dream…

Inspirational poem! Well done to my fabulous friend Kate Swaffer, Chair of the Australian Advisory Group of People Living with Dementia. Not only did Kate have a dream but, working with like-minded people from across the world, she turned it into reality.

I am very honoured to be an Associate of the wonderful Dementia Alliance International, and to have met so many of them either on-line or in person at the ADI World Alzheimer’s conference in Puerto Rico recently, where Kate and I presented our ‘social media double act’ as part of the Opening Ceremony. Take a look at Kate’s daily blogs – you will learn a great deal about living with dementia, including posts from other DAI members …

advocacy 2When I discovered people with dementia did not have a voice

I had a dream

When I experienced the stigma, discrimination and isolation of dementia

I had a dream

When I realised that most of the support available was for carers

And what support was available to people with dementia was overtaken by others

I had a dream

A group of by and for people with dementia

Dreamed of by many with dementia

An authentic voice

No longer others making decisions for us

Or about us

Without us

No-one telling us what it is like

To live with dementia

Or what is best for us

Without first asking us

I had this dementia dream

Many had the same dream

Dementia Alliance International

Is part of that dream

The dream to support and empower

Other people with dementia

To speak up


For our lives right now

And our futures


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About Gill Phillips - Whose Shoes?

Passionate about personalisation in health & social care. Creator of Whose Shoes? - an imaginative approach to helping people work together to improve lives.
This entry was posted in Blogs, dementia, Guest blog, personalisation, TLAP - Making It Real, well-being and tagged , , , , , , , , , , , , , , , . Bookmark the permalink.

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